This week I have mainly been hungry.
So very hungry.
I can’t blame it on the exercise, I doubt I’m doing enough more than normal to make me want to inhale a cake (with box, if it takes too long to get off).
The long and short of it is that I have been in a constant battle with myself. “You do not need a biscuit. Oh ok, just one biscuit, but have the dark chocolate ginger one because it is basically a health food.”
I am trying to choose the right stuff, upping protein and all that shiz, but some weeks, we just need all the chocolate, am I right?
However if any of you wise folks know of more suitable snacks that you have found helped to keep you going through the day as your mileage crept up, please let me know. Yes I know. Nuts. They just aren’t as appealing as chocolate biscuits. Maybe homemade healthy flapjacks that don’t just taste like dry bird food? Let me know.
In terms of running, this week I have been running solo. This meant all runs were done on the treadmill (because it is new and because it is a novelty, and because I am addicted to Netflix).
This also means dressing in less due to increasingly warm conservatory conditions rather than dressing for sleet, so I broke out the charity vest this week. Loving the colour. Not loving the lack of sweat absorbency (it slaps against my chest when it gets too wet)….
The runs this week were a four and three mile run on Monday and Tuesday, and then the dreaded interval training on Wed. (The Greatest Showman is currently my spotify fav for running – I’m jazz handing away like crazy) The week was finished off with a nine mile run on Saturday morning, which was a hard slog on the treadmill but the weather was horrible and you know….Netflix*
*This blog post is not sponsored by Netflix. I wish.
So all in all, twenty miles done this week, and I’m feeling good. Hungry, but good.
In Guy news, he went to see the bone specialist consultant man again (he probs has a proper title) and has found out that he doesn’t have osteoporosis. This does mean that the aching joints and bones are just down to Crohns and there isn’t anything that he can give him to help (not that it will help much anyway, apparently) while Guy is on a clinical trial.
Yes, Guy is on a clinical trial. He has been on it for just over a year now, and actually it is nearly over, ending in a couple of months. It is for people with severe Crohns to trial a new biologic drug, that they will keep on getting if it works for them because unlike in the USA, when a trial finishes, they don’t take the drug away from the trial patients if it is working for them while the drug is approved.
On the one hand, you might not be getting any drug, only the placebo (which in fact is what we suspect Guy has had for the last few months). But on the other hand, you might be getting amazing drugs that are worth a lot of money, and drugs need to be tested on someone! If your regular test results show you are deteriorating and you WERE on the placebo, you get switched back to the real thing. Apparently, they don’t just let you wither away and die and strike up another body as being proof that their drug would have worked if you had taken it.
In the past, Guy has tried other Crohns medications, such as Humira, but they didn’t work for him and there wasn’t really anything else that looked likely to help him until his gastroenterologist put him forward for this trial. And now his professor has two more trials coming up and he thinks Guy would be suitable for one of them.
He also gets a lot of care. He has a full medical (inside and out – believe me, he might be a bit manky but there isn’t anything else going on that is undetected – they check everything!), a phone line direct to his medical team at any time, he gets a lot of fuss, hot drinks and biscuits, he gets referred immediately if something else crops up and the waiting time is so short. Plus he has sympathetic doctors and nurses who cluck over him and tell him how poorly he looks, none of which he gets at home.
He took me with him for one appointment because I am nosey and wanted to meet the people who run it as he talks about them a lot, but apparently I embarrassed myself by asking a lot of questions about the trial equipment/consumables they were using and “no one normal does stuff like that”. In my defense it is just interesting seeing it from the other side, because the company I work for supplies clinical trials.
I have not been allowed to go back…..
I’m just going to drop in the fundraising page now because the last thing I’m going to talk about today is not for those people who have issues with needles (JEN, I mean you. Stop reading.)
This Thursday I am donating blood, so I am making excuses in advance for why my long run next weekend will be, at best, shit. It will be like running through treacle, because as it turns out, when you give away a pint of blood, you realise that actually it was quite handy for oxygenating the old legs.
Guy has had four blood transfusions in the past when he had sepsis and candidiasis. I cannot tell you how grateful I am to those people who took the time out of their day to donate a pint. People just think that blood is needed when a patient is bleeding out, and of course that is true. But it is also needed for other reasons. Guy was incredibly anaemic. He was pale, listless, and had no energy. Seeing how much a transfusion changed him was quite amazing – it did bring him back to life. He had colour in his cheeks, he was able to move, he was chatting and eating. It’s bloody good stuff!
I always donate and I do always drone on about other people doing it too. Obviously you might not be able to donate due to health reasons, baby reasons, needle phobia reasons, and I appreciate that. But please, if you haven’t ever donated because you’ve just not had the time or inclination, just pop along to the page. The NHS have really raised their post donation snack game and you will feel smug all day long.
(Side note: At our local donation location, they serve chocolate Club bars – they are so much more disappointing than I remember them being. Am I the only one in the Club hate camp?)
I don’t mind having one crappy run for that reason. If you already donate blood regularly, then thank you so much. If you can’t donate, that’s fine (you can make it up to me by donating here instead.
Too much? OK, I’m going….